I have the disease myself and no doctor has ever told me that anything could be done to halt the progression of the disease. I was always told I had to wait for the disease to "burn itself out" before they attempted treatment, which they began 10 years ago when I was 16. Perhaps there are now new treatments available? But I agree that there is NHS treatment available to manage the symptoms- goodness knows I've had plenty of it. We're very fortunate in this country to have a free and largely excellent health service!