The Old Trafford wicketkeeper and his brother Noel set up "Freddie Fight" after Noel's son was diagnosed with Congenital Adrenal Hyperplasia (CAH).
It is an extremely rare disease which can prove fatal, particularly at a young age. It leaves sufferers with many complications including no cortisone and extreme variations of sodium in their bodies.
Freddie has already spent far too much of his young life in and out of hospital. He will have to take medication four times a day for the rest of his life and has had to endure daily blood tests.
In fact, because his hands were the first place nurses tried to take blood from Freddie, who lives in Kent, he began sleeping on his hands out of fear.
He has also overcome meningitis, even more serious for a CAH sufferer.
But his courage to battle has inspired the Sutton brothers to raise money in a bid to help other sufferers.
The duo have so far collected £30,000 by climbing Ben Nevis, while Noel recently completed the Three Peaks Challenge of Ben Nevis, Scafell and Snowdon in under 24 hours.
Luke is realistic enough to know that the money they raise won't help to find a cure, but they are desperate to help experts devise another way to test blood rather than putting babies through the ordeal of having needles stuck in them several times a day.
"Children's veins haven't developed fully and watching Freddie go through all the blood tests he has had to have is one of the most horrific things you will ever see," explained Luke, 32.
"All the veins in his hands and feet collapsed. In the end he had one foot left that they could take blood out of. You just think that with all the advances surely there must be a more humane way of testing than pinning a small child down on a table and doing that to them.
"That is our motivation, to find an alternative method."
Luke and Noel have set up a page on Facebook called "Freddie Fight" in a bid to raise awareness of the disease and to encourage people to donate money.
"I don't say this lightly, Freddie is a real inspiration to my brother and I," added Sutton.
"We have both had bad experiences in our lives but we look at what that little boy has had to go through, and he is scrapping away.
"He is an unbelievably brave little boy. My brother and I really do think he is destined for something special in his life because he has had to overcome so much more than other people do so early in his life.
"Now he is nearly five he does a lot of things that most normal boys do, but a couple of weeks ago something happened in his body, his levels got distorted and he started vomiting.
"The vomiting continued for four days, he probably slept an hour in that period and it gives you an indication of the complications involved if he gets just a little bug.
"He is such a bright boy, unbelievably intelligent and has a charm about him.
"My brother used to worry a lot that all these unhappy experiences may affect him as he gets older, but maybe it has had the opposite effect and made him a great character.
"His life will never be normal but he is so used to it now his life will always be normal to him.
"We just do what we can when we can to raise money. Noel has got something lined up for next year and he is trying to lure me into it.
"My brother is pretty mental, the harder the task the better for him! We will be doing this for many years to come."
To donate money or to find out more about Freddie Fight, visit the Facebook page. For more information on CAH log on to www.livingwithcah.com.
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