A CANCER patient `sentenced to death' because the NHS would not pay for a drug that could prolong her life, has lost her latest bid to get the treatment.
Grandmother Jean Murphy 62, who has at most eighteen months to live, was told that treatment with the drug Sutent, could extend her life by six months.
An NHS panel was ordered by a judge to look at its case again after initially refusing Mrs Murphy the drug.
After the panel ruled against her again, Mrs Murphy launched the current appeal which was turned down yesterday following a hearing at the headquarters of the Salford Primary Care Trust in Salford yesterday. Mrs Murphy's lawyer Mark McGhee, said Mrs Murphy who has kidney cancer, was "utterly devastated" by the Trust's ruling. He said: "The answer was no in emphatic terms, and the decision was made in accordance with its policy and procedures."
Though disappointed at the decision himself, he said it would not stop him pursuing further legal action. "We will have to look very, very carefully at the decision and the reasoning behind it" he added.
"The only option then would be to go back to the High Court, but the sad truth is that time is running out in this particular case.
"Such action would take weeks, and tragically Mrs Murphy does not have weeks, if this drug were to have any beneficial effects."
"Lost"
He said: "To make matters worse, her husband Michael who has Crohn's disease, and for whom she cares, has already made it clear that if his wife is denied this treatment, he himself has effectively lost the will to live."
Mrs Murphy from Salford, who is in constant pain and uses a wheelchair, had already twice been denied the drug, which an expert said could shrink her tumour, giving her vital extra weeks of life.
It is rarely prescribed in Greater Manchester, despite being routinely available in Cheshire and Liverpool, but a judge ordered a review of the case after finding that the Trust had not considered Mrs Murphy's circumstances.
The drug, which costs £3,500 per month, was recommended by her consultant at Christie Hospital, Prof Robert Hawkins who described her as `an ideal patient.' He said it would have a 40 per cent chance of shrinking the tumour, and would prolong her life by around six months.
At the High Court, Prof Conor Gearty, a human rights expert argued that the NHS panel had acted unlawfully and unreasonably, and that her situation deserved special treatment.
The Salford PCT voted against prescribing the drug, claiming that her case was not exceptional enough. The appeal hearing yesterday came to the same conclusion.
Petition
Thousands of people had signed a petition urging the Trust to change its mind in favour of Mrs Murphy, and her family had urged Health Secretary Alan Johnson to intervene.
Her daughter Cathy Ostasz wrote: "Jean Murphy has been sentenced to death because Labour don't care. Without the treatment Jean Murphy will die."
Last summer broadcaster Tony Wilson, who later died of a heart attack, had to rely on showbiz friends to pay for the drug because health bosses wouldn't approve the treatment.
Salford Primary Care Trust said that a small number of studies on the effectiveness of Sutent, indicate that for the majority of patients - around 60 per cent - the drug had no effect in delaying the progression of cancer.
In 40 per cent of sample studies, there was an indication that the progression of the disease was delayed typically, for eight months.
The Trust says that while Sutent is an advance in the treatment of Mrs Murphy's type of cancer, it does not provide a cure to what is inevitably, a terminal condition.
It says the Trust is investing new money into cancer services for Salford people, including £1.5 million for services at Christie, £700,000 at local hospitals and £430,000 on breast cancer screening.
By funding Sutent treatment, it says the Trust would have make choices about which other services not to fund.
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Showing comments 1 to 20 and replies | View All
S P In exile, Tameside (31/07/2008 at 21:43)
This government can find money for immigrants, Northern Rock, billions spent on improving the lives of Londoners, billions spent on an illegal war in Iraq and the amount this lady needs wouldn’t even make a splash in the ocean of wasted money.
manchester girl (31/07/2008 at 21:50)
its a disgrace others get the drug in other areas.
I dont know how they sleep at night
Mike.....Irlam (31/07/2008 at 22:04)
She has basically been sentenced to death by the 'NATIONAL' Health Service.
Thats the key word here 'National' which obviously doe's not apply under the NuLabour regime.
chris oconnor (31/07/2008 at 22:33)
its beggers belief in this day and age you can't get anything back you you have paid in. its her human rights as a british tax paying citizen to receive nhs help, so what the hell are we all paying for.
morons sack em all and get this stupid goverment out.
trust me jean "God will Help"
Regard and best wishes
chriso
halokittykat, manchester (31/07/2008 at 23:05)
hurrr makes me mad mad .. i hope you keep going jean keep on going with it dont give up hope.. we all should get nhs drugs for cancer free ... the uk is the worst place to live ever.... i hate it here seeing lovley ladies like this suffer the ....... good luck jean set up a something so we can give money to heLP you... take care god BLEES YOU XXX
SAPPER, MANCHESTER (31/07/2008 at 23:43)
What is more exceptional than dying.
I agree in one way because the PCT's don;t have enough money but who's fault is that. Because we have a post code health system where it is supposed to be a NATIONAL health system where on PCT will pay for drugs and another won;t that is not right. For some to be sentenced to death and that is what they have done to Jean for money to me that is criminal.
Also why do these drugs cost £3500 a month who is getting all this money it is they who should be challenged. For aguements sake this is 4 tablets a day which works out at £28:23p per tablet which is even at half that price ridiculous.
I feel for both her and her husband and my thoughts are with them.
Dan Hibbert (01/08/2008 at 02:22)
Voter (01/08/2008 at 05:56)
Ian Howells (01/08/2008 at 08:03)
The Thunderer (01/08/2008 at 10:16)
The question that those who have responded with their hearts have to face is what would they have done if a member of the panel? Would they simply allow all such requests/appeals?
A sad story but one that will become more common with advances in medical technology/drugs.
Sam Anderson (01/08/2008 at 10:31)
I truly despair of this country and it is getting no better.
Jay B, oldham (01/08/2008 at 11:00)
Primary Care Trust?
so Jean is
A)Ill and is of PRIMARY concern.
B)Ill and needs CARE
C)Needs treatment to prolong her life which comes from this TRUST.
so in theory Salford PCT isnt doing its job properly.
So why isnt something being done about it?
Ian Howells (01/08/2008 at 11:10)
lechies5050, Manchester (01/08/2008 at 11:42)
Best wishes from me and the wife.
Leo B (01/08/2008 at 12:00)
He/she wins my prize for the stupidest remark ever published in the MEN boards, against some very tough opposition.
Pippa, Manchester (01/08/2008 at 12:45)
Pandora (01/08/2008 at 14:07)
KRISTY (01/08/2008 at 15:51)
(1) Everyone's right to life shall be protected by law. No one shall be deprived of his life intentionally save in the execution of a sentence of a court following his conviction of a crime for which the penalty is provided by law.
As Jean has been denied her rights can her family sue the PCT or the govt on the grounds of unlawful killing when the worst comes?
How can it be that assisted suicide is not legal, drs are there to save life we are told but PCT/Govt are allowed to tell them who to kill or tell you - "sorry you have been picked today - to die" - probably in agony as no one will allow you to overdose but the pain relief is insufficient but sorry you have to put up with that!!
Recent cases that are similar to this one say the patient can't buy the drug themselves privately because they will lose her right to NHS treatment because govt says we can't have a two tier system - the two tier system is already there is it not - it is the same NHS doctors who work for the private sector also is it not?
Post code lottery is an absolute disgrace, a drug should be allowed nationally or not at all, - the human rights act listed above contains
Article 3: Inhuman treatment
No one shall be subjected to torture or to inhuman or degrading treatment or punishment.-
Does the first line about torture not come into this case also? Mental torture!!!!!!
I know we can't provide for everyone as there isn't a bottomless money pit but there are so many double standards in this country that are "cherry picked" for the particular moment to suit whoever, whenever and no firm guidelines so everyone knows the score - we say children should have boundries then they know where they are up to - should we not have these basics in place with all the PCT and Govt instead of playing mind games with these poor people and playing God just because you can?????!!!!
I hope her husband doesn't give up his medication, he should continue to fight on for Jean in order to make changes and not just become another tragic statistic himself.
My prayers are with you Jean and your family
Pippa, Manchester (01/08/2008 at 19:11)
bjp (02/08/2008 at 18:09)